Category Archives: Press Statements

Press Statements

DÁIL MOTION ON SPINRAZA SUBMITTED – BROUGHAN

Deputy Broughan recently submitted a Private Members’ Motion on Spinraza and it is now on the clár of the Dáil. The motion is supported by Deputies Thomas Pringle, Joan Collins, Clare Daly, Mick Wallace, Catherine Connolly, Maureen O’Sullivan, Gino Kenny, Bríd Smith, and Richard Boyd Barrett and Deputy Broughan hopes for an early opportunity to debate the motion.

There are approximately 70 people, including 26 children, in Ireland with Spinal Muscular Atrophy (SMA), which is a rare and life-limiting muscle-wasting condition. SMA is the number one genetic cause of death for infants worldwide and will affect around 1 in 11,000 babies born worldwide each year. Spinraza or Nusinersen, which is produced by Biogen, is the first treatment for Spinal Muscular Atrophy (SMA) and is available in 25 of the 28 countries in the European Union but in February 2019, the HSE did not approve Spinraza for reimbursement in Ireland and negotiations with Biogen are ongoing.

LESS THAN €125 MILLION TO MAKE PUBLIC SERVICE BUSES AND TRAINS WHEELCHAIR ACCESSIBLE – BROUGHAN

Deputy Broughan has consistently been asking about the accessibility of public transport and plans for the improvement of this essential public service. Most recently, Deputy Broughan asked about the accessibility of Bus Éireann coaches operating on expressway and regional services for wheelchairs and the accessibility of bus stops in regional areas. The National Transport Authority (NTA) replied to the Deputy on March 28th and gave a very disappointing response.

AVERAGE WAIT TO SEE A NEUROLOGIST IN BEAUMONT IS TOO LONG – BROUGHAN

Recently, Deputy Broughan asked the Minister for Health to report on the number of people on waiting lists to see a consultant neurologist in Beaumont Hospital, with information on the length of time people have been waiting. Deputy Broughan received a direct response from Beaumont Hospital which said that the average waiting time to see a consultant neurologist is 7 months. As of the end of January this year, 422 people had been waiting less than 3 months, 395 had been waiting between 3 to 6 months, 221 had been waiting between 6 to 9 months, and 173 had been waiting 9 to 12 months. Of the 1497 people on waiting lists this year, 286 of those had been waiting for more than a year. 134 had been waiting for between 12 and 15 months, 117 had been waiting for 15 to 18 months, 28 had been waiting for 18 to 21 months, 4 had been waiting for 21 to 24 months and 3 had been waiting for more than 2 years.

BROUGHAN ASKS ORAL HEARING TO ABANDON CLONSHAUGH BALDOYLE BAY SEWAGE PLANT

On Wednesday, the 20th of March 2019, the An Bord Pleanála oral hearing on the Greater Dublin Drainage Project €500 million Clonshaugh sewage plant began in the Gresham Hotel, Dublin. Deputy Broughan attended the opening session of the oral hearing on Wednesday and will be presenting to the hearing on Friday afternoon, the 22nd of March 2019. The Greater Dublin Drainage Project (GDD) is a proposal to develop a new regional wastewater treatment facility and associated infrastructure to serve Dublin and parts of the surrounding counties of Kildare and Meath. The proposal involves a massive wastewater (or sewage) treatment plant and a major sludge hub to be located just north of the R139/N32 in Clonshaugh.

NO INFORMATION CLINICS THIS WEEKEND

Please note that my weekly information clinics will not be taking place this Saturday, the 16th of March or Monday the 18th of March due to the St. Patrick’s Day bank holiday weekend.

My weekly information clinics will resume Friday, the 22nd of March 2019. For further details of the times and locations of these clinics, please see the Contact section of this website.

BROUGHAN CALLS FOR RESTORATION OF FUNDING TO DRUGS AND ALCOHOL TASK FORCES

Today, Deputy Broughan spoke on the motion on Local Drugs and Alcohol Task Forces (LDATFs) which was brought forward by his colleague, Deputy Joan Collins and which he co-signed. The motion calls for the implementation of the commitment in the Programme for Government to allocate an emerging needs fund; the commitment to urgently implement the Public Health (Alcohol) Act 2018; and the acceleration of the work of Garda Asset Profilers. Today’s motion also called on the Government to ensure a partnership approach to the new youth scheme and to conclude the HSE Review of Drugs and Alcohol Task Forces amongst some other measures.

NO DEAL BREXIT HEADACHE FOR MOTORISTS – BROUGHAN

Recently, there have been lots of reports about motorists needing a green card as proof of insurance to travel across the border in the event of a No Deal Brexit. The issue has been raised a number of times in the Dáil and the Taoiseach has said that there will be a grace period for people driving into this jurisdiction without a green card. However, as has been the case all along with the Brexit negotiations, we cannot provide for what will happen when the UK crashes out of the EU on March 29th and every necessary step must be taken to ensure that protections are in place where possible, for citizens living on this island.

BROUGHAN WELCOMES APPROVAL OF KUVAN

Last week, Deputy Broughan wrote about access to Spinraza for SMA sufferers. Another treatment for a rare disease that he has consistently been raising has been access to Kuvan for people with PKU (Phenylketonuria).

Today, Deputy Broughan received the following welcome response from the HSE following his most recent Parliamentary Question on the matter:

HSE MUST APPROVE SPINRAZA NOW – BROUGHAN

Yesterday was International Rare Disease Day, which has been celebrated in Ireland since 2008. Deputy Broughan consistently raises the issue of rare diseases and access to medicines and treatments for various rare diseases in Dáil Éireann.

According to the HSE website “A ‘rare disease’ is defined in Europe as a life-threatening or chronically debilitating disease affecting no more than 5 people per 10,000. There are an estimated 6-8,000 known rare diseases affecting up to 6% of the total EU population, (at least 30 million Europeans), and perhaps up to 300,000 Irish people during their lives.

GARDA STATION NEEDED IN THE NORTH FRINGE – BROUGHAN

Today, during Leaders’ Questions, Deputy Broughan has called on the Taoiseach and Fine Gael to ensure that the need for a Garda Station and greater police presence is highlighted with Garda Commissioner, Drew Harris. Deputy Broughan told the Taoiseach that some districts of Dublin Bay North have being suffering greatly from burglaries, car theft and related joyriding, illegal dumping and serious nightly anti-social and criminal behaviour. Deputy Broughan said that while nationally homicides and a number of other crime categories thankfully fell in 2018, there are disturbing rises in several types of crime in recent figures recently presented at the DMR (Dublin Metropolitan Region) North Joint Policing Committee. These include assaults, burglary, criminal damage, thefts, public order incidents and domestic violence.