Tag Archives: SpinrazaNow

BLOG FOR WEEK ENDING APRIL 5TH

I submitted a motion on Spinraza, which is supported by Deputies Thomas Pringle, Joan Collins, Clare Daly, Mick Wallace, Catherine Connolly, Maureen O’Sullivan, Gino Kenny, Bríd Smith, and Richard Boyd Barrett. The motion calls for access to Spinraza for the approximately 70 patients with SMA (Spinal Muscular Atrophy), including 26 children, in urgent need of treatment and for improved efficiency in the assessment of medicines.